06-29-2024, 04:36 PM
I guess I'll give an update.
Okay, I saw a new neurologist at Kaiser. The last one was very good, but this one is a specialist in movement disorders. She knows her stuff, and I’m starting to realize that neurological disorders are a continuum, and one size doesn’t fit all.. She tested me on a whole lot of movements, and despite me not having a resting tremor or orthostatic hypotension (blood pressure drop when standing)--both common in Parkinsons--my symptoms are still more like Parkinsons. It's really hard to know what to call it, because my symptoms don't completely fit any disease with a name.
Candidates:
Parkinsons -- this would be best, least aggressive, and I might be helped by dopamine..
MSA-P -- multiple system atropy, parkinsonian variant. (Don’t know about dopamine for this)
MSA-C -- multiple system atrophy, cerebellar variant.
I thought it was the latter, but she's leaning towards one of the first two.
Anyway, this opens the door to trying dopamine, which helps immensely in some Parkinsons cases.
I'm starting on an intro dose of dopamine for a week to get my body used to it. That won't show anything. Then I start taking a tell-tale dose. I won't know anything for at least a week.
P.S. During questioning, the neurologist asked if I ever had any exposure to pesticides. Lori asked if I was going to tell about it. So I did, how us kids chased behind a mosquito fogger truck in St. Joe. Once, maybe more times.
The neurologist frowned and said she’d heard that story from so many people. “Didn’t people back then know how dangerous that was?"
Later that night, Lori and I were watching Youtube, and it was showing scenes from The Tree of Life. And there it was, a scene showing a mosquito fogger truck with kids chasing behind it
I guess it was a national pastttime.
Okay, I saw a new neurologist at Kaiser. The last one was very good, but this one is a specialist in movement disorders. She knows her stuff, and I’m starting to realize that neurological disorders are a continuum, and one size doesn’t fit all.. She tested me on a whole lot of movements, and despite me not having a resting tremor or orthostatic hypotension (blood pressure drop when standing)--both common in Parkinsons--my symptoms are still more like Parkinsons. It's really hard to know what to call it, because my symptoms don't completely fit any disease with a name.
Candidates:
Parkinsons -- this would be best, least aggressive, and I might be helped by dopamine..
MSA-P -- multiple system atropy, parkinsonian variant. (Don’t know about dopamine for this)
MSA-C -- multiple system atrophy, cerebellar variant.
I thought it was the latter, but she's leaning towards one of the first two.
Anyway, this opens the door to trying dopamine, which helps immensely in some Parkinsons cases.
I'm starting on an intro dose of dopamine for a week to get my body used to it. That won't show anything. Then I start taking a tell-tale dose. I won't know anything for at least a week.
P.S. During questioning, the neurologist asked if I ever had any exposure to pesticides. Lori asked if I was going to tell about it. So I did, how us kids chased behind a mosquito fogger truck in St. Joe. Once, maybe more times.
The neurologist frowned and said she’d heard that story from so many people. “Didn’t people back then know how dangerous that was?"
Later that night, Lori and I were watching Youtube, and it was showing scenes from The Tree of Life. And there it was, a scene showing a mosquito fogger truck with kids chasing behind it
I guess it was a national pastttime.