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+--- Thread: I'm more broken than you (/showthread.php?tid=270)
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RE: I'm more broken than you - cranefly - 06-01-2024
(04-05-2024, 04:27 PM)thatguy Wrote: I did some hearing tests over a couple years and my right side has some major frequency issues, but via bone conduction tests they determined that the eardrum works, it's just sound isn't getting there, so a hearing aid isn't likely to do much.
I was also looking at getting modern hearing aids for my mom at the time, so I hade some good discussions with the audiologist. The Biden administration opened up hearing aids for over the counter sales, but according to the audiologist, what you can get over the counter is equivalent to reading glasses, keyed to various levels. So it may be an improvement over no aid, but it won't be specifically tuned to your particular hearing.
--tg
Costco might be an option, but not ideal. Online audiologists have swung back and forth on them. Cold right now. I need new hearing aids, have put it off hoping for some clarity. Still putting it off. Good luck.
Lori just got COVID from a jewelry class. She tested positive, I tested negative, but probably wouldn't now. But we're out of tests. This is our first rodeo, but we've had the shots and boosters, so it shouldn't be much worse than a cold or flu.
Right?
RE: I'm more broken than you - Dr. Ivor Yeti - 06-01-2024
Right. Hopefully the jabs do their jobs and it stays manageable. I'm considering Costco hearing-aides as Kaiser doesn't include them.
RE: I'm more broken than you - Drunk Monk - 06-02-2024
Wot?
Sheared many auricular hair cells last night. So worth it but I don’t have many left.
Sorry to *hear* LCF is no longer a Covid dodger and hoping she heals strong quickly.
RE: I'm more broken than you - Greg - 06-02-2024
I am just glad for the return of the Cranefly.
RE: I'm more broken than you - cranefly - 06-04-2024
Just an update. I haven't tested. Don't have any tests. But I got it.
COVID hit harder than I expected. Three days of wracking chills, four days of a bad sore throat (could barely swallow),dizziness, weakness, needed help from Lori to just sit up in bed. And this might be too much info , but I self-catheterize these days, which sounds like a nightmarish thing to do several times a day, but I'm finding it very tolerable. The thing is, I didn't have the balance or coordination to do it, needed help from Lori. And all while this is going on, I'm fearful that thiat this has allowed my condition to worsen, and I won't bounce back.
But I'm back. Just like Jack Nicholsen in The Shining.
Where's my axe?
BTW, I did get my hearing aids at Costco, but they're worn out. My experience: A sound room where they test your hearing, see what you're missing, then boost those sounds until close to normal. Then adjust the hearing aids for that. Youtube promotes a list of best practices, and Costco met a lot of them. But this was in Mountain View, Costco stores might vary, and also the technician. For me, it seemed worth the reduced cost. But lately they'e done some hanky panky, and i'm not certain of them. But I'll definitely be considering them.
They're definitely a step up from over the counter.
RE: I'm more broken than you - Greg - 06-04-2024
Glad you are okay and still out there fighting.
RE: I'm more broken than you - Drunk Monk - 06-04-2024
Axe indeed.
I'm told you can't catch covid if you never test for it.
Heal strong, brother. Hope to see you the weekend after next.
RE: I'm more broken than you - Dr. Ivor Yeti - 06-06-2024
I hope you both heal up completely and quickly.
RE: I'm more broken than you - cranefly - 06-07-2024
I better write this up and not put it off forever. As a record for me, or you.
The worst of COVID was 3 days of chills, 4 days of a super sore throat. Bur then it lingers.
(Lori still tested positive yesterdfay, though she doesn't have major sympyoms. No doubt I would too.)
A mild sore throat, funny taste in mouth like being around a lot of smokers. That's how I imagine it. I don't know if smell or taste is off. Congestion in eustaciion tubes. pressure/congestion in ears. If I lowerr head beneath knees (why would I do thtat? To pet the kitties of course, and to pick up every damned thjing I drrop), I feel pressure/congestion in sinuses. I have a deep cough--I gottta watch that, because people with my condition have trouble swalllowing, and develop lung problems from swallowing stuff into lungs. I have occasional explosiver sneezes that scare the cats. My nose is very runny. No doubt all the congestion trying to work its way out. I think my balance and coordination are back to pre levels. But there is a slight disorientation or dizziness that lingers. Lori has noted this too.
There. That'll do.
RE: I'm more broken than you - cranefly - 06-29-2024
I guess I'll give an update.
Okay, I saw a new neurologist at Kaiser. The last one was very good, but this one is a specialist in movement disorders. She knows her stuff, and I’m starting to realize that neurological disorders are a continuum, and one size doesn’t fit all.. She tested me on a whole lot of movements, and despite me not having a resting tremor or orthostatic hypotension (blood pressure drop when standing)--both common in Parkinsons--my symptoms are still more like Parkinsons. It's really hard to know what to call it, because my symptoms don't completely fit any disease with a name.
Candidates:
Parkinsons -- this would be best, least aggressive, and I might be helped by dopamine..
MSA-P -- multiple system atropy, parkinsonian variant. (Don’t know about dopamine for this)
MSA-C -- multiple system atrophy, cerebellar variant.
I thought it was the latter, but she's leaning towards one of the first two.
Anyway, this opens the door to trying dopamine, which helps immensely in some Parkinsons cases.
I'm starting on an intro dose of dopamine for a week to get my body used to it. That won't show anything. Then I start taking a tell-tale dose. I won't know anything for at least a week.
P.S. During questioning, the neurologist asked if I ever had any exposure to pesticides. Lori asked if I was going to tell about it. So I did, how us kids chased behind a mosquito fogger truck in St. Joe. Once, maybe more times.
The neurologist frowned and said she’d heard that story from so many people. “Didn’t people back then know how dangerous that was?"
Later that night, Lori and I were watching Youtube, and it was showing scenes from The Tree of Life. And there it was, a scene showing a mosquito fogger truck with kids chasing behind it
I guess it was a national pastttime.
RE: I'm more broken than you - Dr. Ivor Yeti - 06-29-2024
Thank you for the update. My fingers are crossed for Choice #1.
Covid-wise, are you all ship-shape?
RE: I'm more broken than you - cranefly - 06-29-2024
COVID hit the eustacion tubes hard in lingering fashion. That finally cleared up. I am just left with a crinkly sound in my ears when I swallow (like swimmers ear).
I went to get my ears cleaned at Kaiser. The nurse said they didn't need it. I mentioned the crinkly sound, but she said that was on the other side of the eardrum and not visible to her.
Anyway, I'm now ready to seek hearing aids. Maybe Costco, maybe a hearing center. Probably not one associated with Kaiser, unless Medicare makes a difference. Or Kaiser got rid of their horrendous middleman model.
RE: I'm more broken than you - Drunk Monk - 06-29-2024
My mom used California Hearing center in Campbell on Winchester https://www.cahearingaidcenter.com
They were expensive (not covered well by her Medicare or insurance) but they were great. But her hearing is at a point where the hearing aids aren’t that effective anymore.
Best of luck. Sorry about the Covid lingerings. I’m still dealing with my shoulder nerve impingement which has got to be a long Covid issue, still on a neural for it.
RE: I'm more broken than you - Drunk Monk - 06-30-2024
Appeared in my newsfeed this morning, clearly to share here: https://www.wired.com/gallery/best-over-the-counter-hearing-aids/
RE: I'm more broken than you - Dr. Ivor Yeti - 07-01-2024
(06-30-2024, 01:22 PM)Drunk Monk Wrote: Appeared in my newsfeed this morning, clearly to share here: https://www.wired.com/gallery/best-over-the-counter-hearing-aids/
That was a timely article -- thanks for sharing!